New life: Two weeks on Crizotonib

Hello. Paulina here :) I was slipping away there for awhile.. I thank God each day for where I am today. I have been taking my 'Angel' pills, as I call them, for 2 weeks now. Why Angel? They are three pills that come shaped as two ovals (wings) and a circle (halo). Three magical pills that I take twice a day. And they have helped.

Within 48 hours of starting this drug, the fevers that have drained me every single night for the past 2 months, were gone. My cough, which I had since September, was gone after about a week. I was given a new life.

I have been catching up on much needed rest, sleeping 12 hours at night and taking naps during the day. The challenge now is regaining strength, as having been bedridden for the past month took its toll on my muscle (non-existant). Good news is, since starting the drug, my weight is up from 38 kg to 42.5 kg today. Appetite is great, my head is clear again and what more can I ask for. It will take some time to bounce back, but I am happy to now be doing physio here at the hospital. Each day I walk a little more.

This past Tuesday, February 1st, our son Karolek turned 4. I realized as we were celebrating when he came to visit me at the hospital, that had his birthday been 2 weeks earlier, I would not have been there mentally. I realize only now what bad shape I was in, I dont remember things: for example a nurse came up to me and I didnt think I knew her -she said she took care of me while I was very ill. I have no recollection of her at all. A very scary thought. I was on so many drugs, but also the fevers just wore me out.. The cancer in the bone was progressing fast, and I was literally slipping away. But on my son's birthday, what a reward that I hung on.. and the drug arrived. What a joy to see him so happy and to be able to hug him tight :)))))

Thank you all for following up on my condition, your support, kind words, and messages have meant so much.

Believe in miracles,

Paulina