Slight miscommunication with the doctors. They found a drug but not THE drug, something similar, maybe better...who knows. To get Crizotinib we need a very strong case to get it on compassionate basis and we don’t (clear indication of lung cancer, but Paula has none showing so far, just the bone marrow showing cancer and blood). And to be put on a trial with this drug takes time and there is none here right now. There is different brands of this drug but not recommended. (need Pfizer) So the other option mentioned to us today might be better since Paula's condition matches the other drug more. Downside is it comes with light chemotherapy! They have it ready for next Monday...should we or not is the question now...??? Or try harder to get Pfizer Crizotinib? Her physical and mental condition is worsening so time is of an essence.
Konrad
Paulinko
ReplyDeletesledze Twoj blog odkad go zrobiliscie, jestem pelna podziwu dla Twojej postawy.
Przesylam Ci mnostwo dobrych mysli, badz pewna ze Bog Ci wynagrodzi Twoje cierpienie.
Stay strong :)
efka