Wednesday, January 5, 2011

The story goes on...

I have no time to write a more detailed message, but I am sure everybody wonders what is happening with Paulina. I will make it very short.

The plan for the New Year succeeded. After kidnapping Paula from the hospital ;) we had 3 hours of fun with friends and our little Karolek. Best start ever into 2011. It was the best thing for Paula, to see her little boy having so much fun  and seeing happy dancing friends and raising a champagne glass in a happy place is always something rewarding. We were back at the hospital at since she felt really tired and a lineup of pills was waiting for her. She needed to rest anyways, but with a smile on her face!!! What great memories after just 3 hours!
She sadly is still in the hospital, kind of feeling worse every day. The fever sometimes doesn’t stop all night and sometimes it stays for the entire day like yesterday. About 39 mostly, peeking close to 40. That is why she is not writing, she just has no energy for anything. Her phone conversations stopped as well as her voice...its harder for her to talk. Walks to the nearby washroom are really difficult and she usually requires help to walk. But this is only when she has that fever; once it goes away she does everything by herself. She now requires constant supervision, and at night she hardly sleeps.

She had a 3rd Bronchoscopy done today as the doctors have an idea what she could have and are testing for this now. She has heavy light sensitivity which is also a clue for the doctors. They dont want to wait for the results and are putting Paula on a drug that should help, whatever they think she has (cmv? and some other one, plus many other viruses that might be there) ...they got really good samples of her lung tissue today so hopefully there will be better results then last time.

...but on a sad note after her last bone marrow biopsy they discovered  that there is 15% trace of cancer...but that doesn’t mean that it is active yet, once they treat the above CMV or similar, this might not show in the next bone marrow and it might just go away...anyhow, hard times. As you can imagine the priority is getting rid of the fever now so she can start thinking clearly, its just taking so much out of her. We believe the doctors are right and its just a bad virus...thay have treated Paula with great results last year and years before, they know what they are doing and we trust them 100%

Konrad

2 comments:

  1. God Bless!!! Always in our thoughts and prayers, Konrad. Paulinka...WE NEED YOU HERE!!! Stay strong ...

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  2. Dear Paulina

    It is Eddy and Sara we have followed up everyday wishing you the best from our hearts, you are a brave girl and this will all be just a nightmare that will be gone in a near future.
    I'm writing an email to a cousin of mine that is a doctor in a high profile government hospital in Cuba where they treat all the head of state leaders there to see if by any chance he has heard of this new drug or has any info.
    Lots of love Paula.
    Eddy, Sara & Diego

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