I feel so truly blessed and so happy to write that we got the drug in Rochester. Prayers have been answered.
It wasnt easy and we didnt have an answer on Thursday. We were booked in for an appointment for Friday at 2pm to get the drug in case the answer came back yes.
Konrad was a superhero on this trip. He managed to keep a 4-year old smiling and entertained despite the boring nature of the trip (two days spent in a cancer center after a 3 hour car ride). All the while wheeling me along in a wheelchair, and taking care of me as I was on my last drop of energy the entire time. Just feeling miserable. My fever reached 41 C, highest it has ever been, during this trip.
We stayed the night in Rochester, were called back first thing in the morning by the center because some bloodwork had to be repeated -and the company was waiting for this to make some decisions. Then more waiting.. the doctor was still in talks with the company half hour before the scheduled time of treatment. We were still in limbo, still didnt know what the answer would be. Then we got the news we were hoping for, and tears of joy.. I got my first infusion of Brentuximab Vedotin (SGN-35).
And now we humbly wait and see and hope for improvement.
Sending all our love to you this Easter.
Paulina, Konrad and Karolek
Pogodnych, radosnych i przede wszystkim spełnionych nadziei świąt Wielkiej Nocy dla Ciebie Paulinko i Twoich kochanych bliskich.Bądz dzielna, jeszcze trochę musisz wytrzymać a zdrówko w końcu nadejdzie.Głęboko w to wierzę i Ty nigdy nie trać nadziei.Good luck Pauluś.
ReplyDeleteKochani, ucalowania i smacznego jajka...wszystko bedzie dobrze
ReplyDeletePaula, all our love and and best wishes, you are so brave.
ReplyDeleteWe wish you the best from our hearts.
Eddy, Sara.
Sending you love and positive thoughts my friend. You are so brave........
ReplyDeleteI am hoping it all turns out great.
You and your family are in my prayers!
Love,
Ivelina
Paula-you're really brave, keep up the fight, with love and all the best.
ReplyDeleteKonrad-you're really a superhero, there's not many of you in this world.
Best wishes and blessings for both of you and Karolek.