Waiting game

Since returning from Chicago (and I attach my two favorite pictures from the trip; from when we visited Rainforest Cafe), things have been a bit crazy.

Karolek is down with a stomach flu since last Friday :( Poor little guy has tummy pain, cant keep food down and even fluids is a challenge (but we're forcing him to drink lots so he stays well hydrated). Vomiting and diarrhea.. And he's unfortunately joined me with the fevers - so now its two of us to track with the anti-fever meds. But we're so proud of him, knock on wood, but he hasnt been sick in as long as we can remember, and this little guy is a TROOPER! So brave. Doctor said it just needs time to pass, so all we can do is wait. I hope he feels better very soon.

On the other hand, my last visit with the oncologist also has us sitting on the fence this week, waiting. Well, I'm still taking the increased dose of Crizotinib as well as the prednisone (75-100 mg daily now!, third week); but we're waiting for information -- to decide what to do next.

Basically the drug navigator at the hospital is going to look into the other two drugs that the doctor in Chicago recommended, for efficacy in my particular lymphoma. Off the top of his head though, my doctor didnt seem to think they were particularly effective in anaplastic large cell lymphoma (ALCL) :( But at least this is being looked into.

My doctor is also looking into the possibility of getting the SGN-35 drug here in Canada. (http://www.fiercebiotech.com/special-reports/10-promising-late-stage-cancer-drugs/sgn-35-10-promising-late-stage-cancer-drugs).

I will update more after my next clinic visit on Friday. Going to take prednisone, temperature coming up already and its only been 8 hours since the last dose.. Dont want to let it get up to 40.1 C (as it did yesterday, and wiped me out for a good portion of the day)..

Remaining hopeful.
P