Thursday, April 21, 2011

Today at 3 pm

There has really been no good news to share and that is why no posts have come until now. No time to write in detail, but I have stopped taking Crizotinib and since Monday I have needed to have 3 transfusions, for low hemoglobin and platelets. My energy level is extremely low, stairs are again a challenge, I have shortness of breath.. and of course the fevers continue.

We venture off this morning to Rochester, NY, where there is a trial center that may be willing to grant me the SGN-35 drug on compassionate grounds. Key word is 'may'.

Please cross your fingers, pray, send positive vibes our way, today Thursday at 3 pm. At this time I will be meeting with a trial doctor there who will assess me and hopefully have mercy..

With an open mind and more optimism than we've all had in weeks, I sign off,

Paulina
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12 comments:

  1. Michael DiBernardoApril 21, 2011 at 6:22 AM

    Good luck, Paulina. I will keep you and your family in my thoughts today.

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  2. AnonymousApril 21, 2011 at 6:27 AM

    We will be praying for you today Paulina.

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  3. Dana CzarneckaApril 21, 2011 at 6:32 AM

    Będzie dobrze, musi tak być!Dużo sił życzę Tobie i Twojej rodzince i dużo wiary w sukces.Buziaki Kochana i bądż dzielna tak jak do tej pory.Bozia i aniołki czuwają nad Wami.

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  4. AnonymousApril 21, 2011 at 6:50 AM

    you are always in my thoughts and in my prayers! Something is going to start going right for you!! SO many good times ahead!! Keep smiling always! :) Love Christina, Justin, Katya and Iakovos

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  5. AnonymousApril 21, 2011 at 7:01 AM

    Modlimy sie razem z Wami Paulinka!!!!

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  6. LakhaApril 21, 2011 at 7:03 AM

    Good luck. We hope things go well today.
    Lakha and Michal

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  7. AnonymousApril 21, 2011 at 7:36 AM

    Paulinko, modle sie o Ciebie zawsze i bede rowniez dzisiaj o godzinie trzeciej-to godzina milosierdzia.Lacze sie myslami i przesylam usciski!
    Sylwia M.

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  8. AnonymousApril 21, 2011 at 8:33 AM

    goodLuck Paula!
    Hope everything goes in your favor!!!! all my love to you always
    marianna

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  9. AnonymousApril 21, 2011 at 11:23 AM

    hope to see you when you return! all the best! thinking of you always,

    pepi

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  10. AnonymousApril 23, 2011 at 1:17 AM

    fingers crossed, all the blessings Paula:)

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  11. AnonymousApril 23, 2011 at 1:22 PM

    Paulinko i Konradzie
    zyczymy wam duzo sily i wytrwalosci a takze Wesolych Swiat Wielkanocnych!
    Ewa i Pawel z dziecmi

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  12. AnonymousApril 24, 2011 at 7:56 PM

    Blessings for you and your family are called upon today.

    Love and peace.

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