While I had a good few days since my birthday, with nice levels of energy, the darn fever that has been giving me trouble for so long now, is just not going away and in fact is getting worse. It has continued to come back not only ~5am before my morning half dose of prednisone (9am), but also creeps back after the dose and lingers until the next half dose (at 1pm)..
Yesterday was the highest temperature I have had, fever peaked at 39.5 C around 10am, 1 hour after my dose. What I did differently yesterday was that I didnt take the Tylenol at the second onset of the headache/fever (9am) because it coincided with the time of taking prednisone.. But when I realized the cold ice pack I had placed on my forehead when I woke up (10am) was already warm from me burning up and I could hardly move my body, I immediately took a Tylenol. No relief, I lay in bed until a little after noon and then slowly the temperature came down, headache subsided, and energy kicked in. I was also unable to eat solids in the morning due to jaw pain, I think from coughing so forcefully, I may have dislocated my jaw.. not making swallowing pills too easy either.. This pain went away a little over the course of the day.
I am taking so much medication, and this week going from one to two doses of Tylenol to keep me out of the fever seems excessive (when I think how long will I have to keep doing that, and it keeps getting earlier that it starts, sometimes 3 or 4am now that it sets in and the first headache wakes me).
Panic set in today, seeing how I felt good enough to go out to spend time with my friend, her son, and Karolek one day, and the next day, I felt like I am back to where I started, unable to move or get out of bed for most of the day.
These swings are very concerning.. But I hope I will listen to my own advice when I say, perhaps it is that I have pushed myself a bit too much (as it is my nature) as I have been excited with my birthday and upcoming holidays to get out when I feel able and live life to the fullest I can. Maybe its a little reminder to keep it slow and take the baby steps forward as they come, if I over-exert I unfortunately may have to deal with bigger leaps back..
On another note, happy to say we have been proactive around here in the past couple of days. Besides dealing with getting our furnace repaired (which conveniently broke Wednesday as a cold night was setting in), we were lucky to get another interesting contraption set up in our basement, a neutralizer for ElectroMagnetic Fields (EMFs). Harmful EMFs (found in each and every home these days) may be a contributor to headaches and may interfere with immune system functioning; research suggests that EMFs can cause cancer or other diseases (more on this on the website above and http://microalpha.com/).
Truth is that both Konrad and I do not sleep too well in our room, and have often awaken with headaches over the past 3 years living here. We moved the bed based on Feng-Shui (so that the foot of bed is not facing the door), then thought it was the mattress, now we will see in the next few days if this neutralizer makes any difference in how we feel. Nice thing to learn was that Karolek's room had much lower levels (we had 10-11 of 12 maximum reading in our room, he had barely detectable signal of EMFs). Maybe thats why I often doze off reading him bedtime stories and wake feeling nicely rested..
We are also going to get back in the swing of things with juicing. Our friends in Florida (Got Sprouts?) mailed us a state-of the art juicer, the Omega 8006, for maximum nutrition :)) We are so excited to try it out and start feeling the benefits. When we were staying with them in Florida, we learned to make all kinds of juices, extract our own wheatgrass juice, with a similar juicer and we loved it. Karolek used to crave the green drinks over orange juice, saying he could feel it made him have BIG muscles, which he showed off proudly. Hard to believe it has been a whole year since we ventured out to Hippocrates Health Institute and our eyes opened to the power of diet, and benefits of juicing. The motto there was "Its not the FOOD in your LIFE, its the LIFE in your FOOD".
Today I will see Dr. Mao, herb and vitamin specialist and traditional Chinese medicine doctor, who has come highly recommended. I will be asking about use of vitamin B17 which has come up often when talking to people lately. I am interested to see if he too will be confused about my condition, or will be able to provide his own diagnosis.. I am hoping he will have some advice about the fever and generally what I can do to get my immune system back in check (since its apparently going hay-wire)..
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